Tuesday, March 31, 2009

Tuesday, March 24, 2009

We're Just Playing

It seems that everytime I ask the kids what they are doing, they say "I'm/We're just playing". Well, okay then.

Hmmm...wonder who Sophie is imitating in her pink Barbie jeep.

Obama vs. Sarah

Most of you have heard about Obama's flub-up on The Tonight Show.  If you haven't, you can see it here on Kat's blog.  I LOVE Sarah's response!!  Check it out here on her blog.  Love this girl!!

Friday, March 20, 2009

Cerebral Palsy Awareness Day



Today is Cerebral Palsy Awareness Day!!
WEAR GREEN to show your support!

There is also a sweepstakes going on over at "Life of Logan"
Check it out, follow the rules and enter to win!!

The average prevalence of cerebral palsy is about 1 in 278 children. This first report of the prevalence and characteristics of CP, the most common cause of motor disability in childhood, are from Georgia, Alabama and Wisconsin. Can you even begin to imagine the numbers if there was a national surveillance?

- Cerebral palsy is one of the most common developmental disabilities in the US, affecting at least 800,000 children, adolescents and adults in America. Cerebral palsy is NOT a disease nor should it be considered one. It is not even a simple or single disorder but rather a broad range of disorders that disrupt a person’s ability to move, sit, stand, walk, talk and use their hands. The severity of the movement disorder and the type of movement difficulties can vary greatly. Some patients have only mild difficulties with balance, walking and fine motor skills while patients at the other extreme are completely trapped in their own bodies, fighting rigid limbs, and unable to speak or swallow.

- There is currently no cure for cerebral palsy and in most cases, it is not preventable. In over 50 years, treatments for CP have not progressed much at all. In fact, today, there remains little consensus among medical professionals regarding what causes CP or how best to treat it. Why do 800,000 or more Americans have CP, and yet we don’t know much more about what causes it or how to prevent it than we did a half century ago?

Resources: Centers for Disease Control (CDC) and Reaching for the Stars (RFTS)

Thursday, March 19, 2009

Totally Awesome 80's Party - Saturday, May 9th - Benefitting "A Child Can Do All Things"!

Dear Friends and Family-

We would love for you to join us for a fun, care-free evening of flashback fashions, vintage dance moves to the Spazmatics (a rad 80’s cover band) and unlimited food and drinks – a great chance cut loose while “giving back” to ACCDAT!

I love the 80's and can't wait to break out my big hair, lace gloves and leg warmers for the party. This also may be your one chance to see Abe in a mullet and tennis shorts. Let's plan to pre-party at our house and practice our Thriller dance moves.

Most of you know how much ACCDAT means to Grace and our family.  For those of you that see her, you know the improvements that have been made.  She is blossoming in a confident little girl.  Please help us support ACCDAT!

here to view the invitation and here to register to attend.

Jacolyn and Abe

Better Than Normal

Therapies are expensive. Equipment is expensive. Money is limited.

Children with special needs require special therapies and special equipment. Parents of these children want to give their child every chance in life and don't want money to be a hinderance. We look for anything that gives us hope. Sometimes mothers return to the workforce. This is difficult because of all the time required to attend to your child. Some parents try to grow money trees...mine is not producing. Others of us look for other opportunities working at home to raise the money required. I, for one, am selling Enlyten (ask me if you want to know more about because this post is not really about me). The creative mothers (not me) come up with some really good ideas.

My friend Mel, the mother of Daniel, is making the cutest crowns.  They are adorable and if you have a birthday or any other holiday coming up, these are a must have.  Check out betterthannormal.org to see her stuff.  You will love it and all proceeds go to a very worthy cause...Amazing Daniel.

Mel and I have never met in person, but we are kindred spirits and I hope someday we will.

Wednesday, March 18, 2009

Tuesday, March 10, 2009

Going to Oklahoma...on our trikes

Today we took trips on our tricycles in the house. It was a bit rainy and muggy outside. I love doing this because it is one thing Grace can do with her siblings. After talking with their NiNi today on the phone, they wanted to take a trip to Oklahoma...so we did.

Wednesday, March 4, 2009