Thursday, February 28, 2008
We spent a very nice day at the Woodhouse Spa...massages, pedicures, champagne and good friends. Can't beat that!!
We had dinner one night at a sushi restaurant. Julie and I can eat our weight in sushi. Marcy was a good sport and ate chicken.
This was taken during a walk in downtown Denver. We had beautiful weather!
After a trip to Keystone and a gondola ride to the top of the mountain we drove to Evergreen (where Julie and John were married) and tasted wines at Creekside Winery. Yummy, Yummy! I won't talk about how Marcy fell in the creek...but she did. hee hee
Monday, February 25, 2008
Thursday, February 21, 2008
Today Grace officially started a new therapy...Hippotherapy at Equest in Wylie. It is about a 40 minute drive for us to get out there but it is so worth it. Last week was our first visit for an evaluation so today was Grace's first day to ride for about 45 minutes. I was so impressed with the time the PT took to get to know Grace and her limitations and the areas that were needed to focus on during the therapy...the different ways she would ride. Grace, of course, cried almost the entire session, but that was to be expected. She always does the the first time we do something new. I can't wait to see how she does next Thursday
Tuesday, February 19, 2008
We are now attending yet another therapy we can't afford but I'm very excited about. Last week we had an evaluation at Equest for Hippotherapy. I was so impressed with the PT and her assessment of Grace. We are now going to be going on Thursdays. I can't wait!!
E Stim vs. Botox....We were scheduled to do another round of Botox this month but after hearing about Electrical Stimulation, and having it recommended by the PT at Equest, we have delayed Botox for the time being. I hope to learn more about E Stim on Thursday. Don't know the cost but I'm sure insurance doesn't cover it. UGHHHHH!!!!
AFOs vs. Piedro Orthodic Shoes. There are two different trains of thought on this. Our PT wants us to use AFOs and the CE conductor thinks that the orthodic shoes would be better for Grace. Insurance doesn't pay but about $200 for the $2,000 AFOs and doesn't pay anything for the $250 Piedros.
Ok, my head is swimming and I'm really tired, so if you have an epiphanies on these subjects, let me know. I will give you more details on everything later...I'm going to bed now. I'll leave you with a cute photo of Mack and Kathryn on the Plasma Car. I think she likes it even more than the kids do.
Friday, February 15, 2008
I'm not a big fan of Valentine's Day. I'm not adamantly opposed or anything, I just think it's a manufactured holiday that some people feel obligated to celebrate...I'd rather just have a random Valentine's Day to be chosen by the loved one. That way there are no expectations and no obligations.
Well, my valentine surprised me. He asked Kat to come watch the kids and planned a night out for us without me even knowing about it. It wasn't Feb 14 but Feb 13...which made it all the better. We hadn't had a date in a very long time. As we left the house, Kathryn said "Ok, you have to stay gone at least 2 hours". And we thought..."no problem". After a very nice dinner at The Porch we decided to try to make a movie. We had missed all the 7:00ish movies and would have to make a 9:00ish movie. That would get us home close to midnight. So after deciding we didn't want to stay out that late we went home and watched American Idol that I had taped. I think we stayed out 1 hour and 45 minutes...we almost made it. We are SO lame.
Wednesday, February 13, 2008
Monday, February 11, 2008
What makes this dream even stranger is that as I opened my email to read the Chapter of the day (Join the Journey) and it was this....
Mark 2 - Jesus Heals a ParalyticA few days later, when Jesus again entered Capernaum, the people heard that he had come home. So many gathered that there was no room left, not even outside the door, and he preached the word to them. Some men came, bringing to him a paralytic, carried by four of them. Since they could not get him to Jesus because of the crowd, they made an opening in the roof above Jesus and, after digging through it, lowered the mat the paralyzed man was lying on. When Jesus saw their faith, he said to the paralytic, "Son, your sins are forgiven."
Now some teachers of the law were sitting there, thinking to themselves, "Why does this fellow talk like that? He's blaspheming! Who can forgive sins but God alone?"
Immediately Jesus knew in his spirit that this was what they were thinking in their hearts, and he said to them, "Why are you thinking these things? Which is easier: to say to the paralytic, 'Your sins are forgiven,' or to say, 'Get up, take your mat and walk'? But that you may know that the Son of Man has authority on earth to forgive sins . . . ." He said to the paralytic, "I tell you, get up, take your mat and go home." He got up, took his mat and walked out in full view of them all. This amazed everyone and they praised God, saying, "We have never seen anything like this!"Now it's not the healing part of this story that the commentator focused on but the group of people who brought the man to Jesus. The group that supported the paralytic. The people that surrounded him with love. So, although I love the healing part of the story, and I pray that for Grace everyday, I also love that we have a support group just like the paralytic, that picks Grace and me up when we just can't walk anymore.
Saturday, February 9, 2008
Friday, February 8, 2008
My mother (NiNi) came for a short visit. She brought stickers for the kids. Mack wanted to wear ALL of his. We are so glad you came NiNi.
She didn't say so, but I think she expected to see me bald and sipping tea with crumpets. She found neither of these things but I was babbling incoherently.
Tuesday, February 5, 2008
Tonight Grace decided she needed to use the phone as she sat on the potty. I asked her who she was calling and she said "NiNi". Grace loves her NiNi!
Notice there is no one on the blue potty. Any ideas on how to get Mack to use it? The candy bribes aren't working . I'm thinking I may have to pull out the macaroni and cheese or a ham sandwich :)
Monday, February 4, 2008
In the meantime, this sweet girl is helping me with tax returns. She is adding numbers on the calculator with amazing accuracy. She just looked at my watch and said "Oh, that's a pretty bracelet". So we are going to go find more pretty jewelry. Maybe the day won't turn out all bad.
Sunday, February 3, 2008
Saturday, February 2, 2008
We are also seen increased endurance in walking in her walker. She can now also adjust her legs without assistance when she gets in front or behind the walker. That is HUGE. She previously would just get stuck and we would have to adjust the walker for her.
In addition, we are hearing many new words and singing. Her communication skills have taken off. Grace's PT, OT and even her MDO teachers have all commented on Grace's improvements.
Now, I don't think that CE is a miracle cure, because we still have a long way to go but I do have to say that much of my original skepticism about the whole process is gone. I believe that CE along with PT, OT, and ST that Grace has been doing the past 2 years has gotten her this far. To be perfectly honest I think that the 3 hours of concentrated therapy she gets at CE cannot hurt. I, unfortunately, can't do this at home...I have too much help ;) To date Abe and I have bought into the CE idea enough to sign Grace up for at least two more camps...one in April and one in July. Now we just have to come up with the money. If you know of anyone who needs their tax return prepared in exchange for a donation to ACCDAT please let me know.
I wish I had photos to show Grace working at CE but so far I can only observe where she can't see me because if she does see me she starts the fake whining thing(she's really good at it) and just wants me. Hopefully that improves and I can get photos. She's doing great!!