Many of you have been asking about Conductive Education(CE) and Grace's progress. Thank you so much for your interest and concern. Grace has just finished a 4 week CE camp at A Child Can Do All Things and I'm happy to say that we are seeing some great things happening with her. She seems to be stronger in her trunk and is able to sit in a normal chair now with only wedge seat cushion while reading a book or coloring. This is such an improvement for her as she previously had to sit in a seat with full support. She still tires out but it is so exciting to see her sitting at a table with her brother and sister. She is also sitting in the floor unassisted for longer periods of time. We are working on moving in and out of this position.
We are also seen increased endurance in walking in her walker. She can now also adjust her legs without assistance when she gets in front or behind the walker. That is HUGE. She previously would just get stuck and we would have to adjust the walker for her.
In addition, we are hearing many new words and singing. Her communication skills have taken off. Grace's PT, OT and even her MDO teachers have all commented on Grace's improvements.
Now, I don't think that CE is a miracle cure, because we still have a long way to go but I do have to say that much of my original skepticism about the whole process is gone. I believe that CE along with PT, OT, and ST that Grace has been doing the past 2 years has gotten her this far. To be perfectly honest I think that the 3 hours of concentrated therapy she gets at CE cannot hurt. I, unfortunately, can't do this at home...I have too much help ;) To date Abe and I have bought into the CE idea enough to sign Grace up for at least two more camps...one in April and one in July. Now we just have to come up with the money. If you know of anyone who needs their tax return prepared in exchange for a donation to ACCDAT please let me know.
I wish I had photos to show Grace working at CE but so far I can only observe where she can't see me because if she does see me she starts the fake whining thing(she's really good at it) and just wants me. Hopefully that improves and I can get photos. She's doing great!!