Wednesday, March 12, 2008
What's in a Name...or a Diagnosis?
A few weeks ago I was talking with a friend about her desire to forgo getting a formal diagnosis for her daughter who has different needs. She didn't want her daughter to be labeled. She didn't want children in school saying "Oh, that's the girl with CP". I have been thinking about this ever since.
Although I was anxious to put a name on her developmental delays, the doctors deferred giving Grace a diagnosis until she was almost 2 years old. I kept hearing that regardless of a diagnosis, the treatments would be the same. However, for me, logic dictated that we give the affliction a name. How would I research and attack the issues when I didn't know what they were called? Surely we would need a diagnosis for something....if only for for insurance purposes.
Well, I've really started reevaluating this thinking....do we really need a diagnosis? Do I really need to tell people that Grace has Spastic Quadraplegia Cerebral Palsy? Why do I always have this need to explain the entire situation to people? Can I just simple say..."She has some spasticity" or "She has some high tone in her muscles". Maybe I'll just say..."She's Grace...she's an incredible little girl...get to know her...you'll absolutely fall in love".