Today Grace had round two of Botox injections. There were a few tears, but as always Grace handled it like a champ...and I handled it quite well myself. I've become a pro at the all the doctors' visits, at all the therapies, at picking at equipment and even at discussing Grace's disabilities without breaking down and sobbing. I thought I had the art of being a good cp mom down really well.
Today something happened that brought new things to light for me. Things that I'm afraid are going to be harder for me...and Grace...to handle.
After baths tonight, Mack and Sophie were running around and hugging each other. It was a game that started with "I hug you!" and often ended with both of them on the ground laughing hysterically. Grace and I sat on the sofa reading a book, watching and laughing with them.
Grace says "I want a hug".
"Sophie and Mack, Grace wants a hug. Can you give her a hug." I ask.
"No!" they scream and run in circles laughing.
So Grace, being the smart girl she is says "I want to stand up".
She's thinking...if I stand like them then I'll get a hug. So I stand her up.
"Look Grace is standing, can you give her a hug." I plead.
"No!" is their response.
Grace is dejected and I'm...well, I'm furious!!! How can they reject her!?! Why won't they play with her!?! Is this the way school will be for her!?! Is this the way life will be for her!?! Everyone goes to bed and I sit on my front steps sobbing.